Meant to keep this up daily, but I've not posted since Thursday! What has happened? Let's think....
Friday was pretty much like the rest of the week, except that I got to sit down with Dave Kilat and tell him about my diagnosis. I've always liked and respected Dave. He was sympathetic and kind, as expected. Turns out that he has a daughter-in-law who has just been diagnosed with breast cancer (at only 31), Sad sad sad! Hopefully they have caught her early.
Saturday should have been Flying Frogs day, but Finn had a dress rehearsal for his Suessical on Sunday. I dashed to the Infusion unit to get my dressing changed, which went fine - nurses are all kind and generous with their time. Took Finn to rehearsal, but he didn't know where he was supposed to be! We eventually found the rehearsal already started in the gym - a little late, but it didn't matter. Rest of Saturday, went for a walk, cooked and played on the PC.
Sunday - phoned home via skype as usual. I think it's helpful to talk about things to everyone I can, and Mum and Dad both went through similar treatment, though Dad may not remember. Not too many technical difficulties this time, which was nice - they had had Jon and his family, plus Coral, over to visit on Saturday, so there was a lot of news.
Then the Suessical. A lot of technical issues with sound dropping out and disappearing altogether, but it was a lot of fun. Finn looked like he was enjoying himself (though taking it very seriously!) and was in time with the rest of his group during his performance (they were army cadets at military reform school, appropriately!). Had 2 beers on Sunday night while cooking - I confirmed with one of the nurses that it would do no harm, while the pump was not attached, although she warned me it may not taste right! It was fine, and I enjoyed it! I think for future Sundays, I shall invest in something a bit more special than Brew Free or Die, although that is perfectly fine!
Monday was the re-attachment of the pump. It had been nice to be free of it for a couple of days. Then radiotherapy as usual, and then back to Santa Rosa for the Cancer Support Group. Really glad I went - also glad that Kathy was there to break me in! There are people there who have been suffering for a long time and with far worse conditions than mine, but everyone is positive and forward-looking. I'm going to enjoy attending, I think!
There's one guy, Jay, who had Colo-rectal cancer and underwent the same treatment as me, even down to the same surgeon (although neither of us could remember his name!). It was interesting to talk to him and get some insight. He's 74 and has weathered the treatment just fine, so it should be a breeze for a youngster like me, right!!!
The rest of Monday was spent sleeping! I decided not to head back to Petaluma and headed home - described the meeting to Jean and then fell asleep! Evan went to get Finn, so I basically just stayed in bed until about 5:30!
Tuesday is the regular check in with the doctor day at the Rohnert Park Center. Weight was pretty much stable (although I'm expecting it to drop just because I'm not drinking), temperature and blood pressure fine. I described my toilet habits, which are definitely changing, but not dramatically as yet - although I have started taking precautionary nausea meds and have bought some wet wipes.
Now it's Wednesday and HR are making a fuss about the form that we gave to Dr Akhtar and that he appears to have lost! I've got a copy and they've given me a week to get it sorted - no idea what they would do if I don't do anything about it! Tired, but I have been able to get some work done! I don't think I can take on any major projects, though - I think my most useful role at the moment is as a sounding board for Luke/Tatiane and to just fix data here and there!
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